Draft:Elizabeth Ansell
Founder and executive director of #NotJustFatigue
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Elizabeth Ansell is an American nonprofit founder, producer, and patient advocate known for her work on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). She is the founder and executive director of #NotJustFatigue, a 501(c)(3) organization publicly launched in March 2024 to promote awareness, education, research funding, and federal policy engagement related to ME/CFS.[1][2]
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Ansell graduated from the University of Pennsylvania with a Bachelor of Arts in English with a Cinema Studies emphasis. She began her career in television production in New York City, working for networks including ABC News and Showtime.[3]
After developing severe ME/CFS in her twenties, she founded #NotJustFatigue to address gaps in public understanding and research support for the disease. The organization produces documentary, photographic and educational media content to spotlight the lived experience of ME/CFS.[4] Its website and media projects have received multiple awards including recognition from the Webby Awards and the Shorty Awards.[5][6]
Beginning in 2024, #NotJustFatigue engaged in federal advocacy efforts, including meetings with congressional staff to advocate for increased funding for ME/CFS and implementation of the ME/CFS Research Roadmap.[3] The organization worked in collaboration with #MEAction to raise awareness of the roadmap among lawmakers.[7] In 2025, Senate Labor-Health and Human Services appropriations report language recognized ME/CFS within the National Institutes of Health’s RECOVER initiative for Long COVID and directed the NIH to develop an implementation plan for the ME/CFS Research Roadmap within 180 days.[3][8][9]
Ansell has written pieces on federal health policy and chronic illness for outlets including STAT and The Connecticut Mirror. She has also appeared on podcasts and interviews discussing ME/CFS advocacy and public awareness, including the Brain & Life Podcast.[4][10][11]