Myotonic Dystrophy Foundation
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| Founder | Shannon Lord[1] |
|---|---|
| Type | Non-profit |
| EIN: 20-5014628 | |
| Headquarters | Oakland, California[2] |
Chief Executive Officer | Dr. Tanya Stevenson, EdD, MPH[3] |
| Website | www.myotonic.org |
The Myotonic Dystrophy Foundation (MDF) is a patient organization focused solely on myotonic dystrophy (DM). Based in the Preservation Park of Oakland, California, MDF was founded by families living with myotonic dystrophy. It is an American 501(c)(3) non-profit organization.
