Skeletal Dysplasias Alliance
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The Skeletal Dysplasia Alliance is an organization dedicated to advocating for individuals with conditions such as achondroplasia and other skeletal dysplasias with dwarfism (ASDD) across Europe. In the context of global advancements in recognizing the rights of people with disabilities, the alliance emphasizes that the unique needs of the ASDD community that have historically been overlooked.[1]
The alliance collaborates with various organizations to address the common challenges faced by individuals with ASDD in Europe. Despite progress in EU disability policies, there is still an observed gap in acknowledging and addressing the specific needs of this stigmatized community. The consensus declaration presented by the alliance serves as a call to action, urging the European Union to listen to the voices of people with ASDD and implement real, lasting solutions. The alliance envisions a 'social Europe' that establishes common standards, fosters increased cooperation, and brings about tangible change for individuals with ASDD.[2][3]